ConferCare


Preliminary patient-focused meeting outline (Saturday 09:00 - 18:00)

8:30-9:00 Breakfast/Registration
9:00-9:15 Welcome, agenda Overview (jointly with all)
9:15-10:15 Patient Introductions & Storytelling
10:15-10:30

NKI Community Expansion – setting the stage for community building in the UK and EU - NephCure, NeST, NephcEurope, Alport UK

10:30-11:10 Nephrotic Syndrome Overview – Breaking Down the Diagnoses
11:10-11:40 Break
11:40-12:20

Learning Breakouts – (Physician Led)

BREAKOUT #1 Treatment Options & Care for Adults

BREAKOUT #2 Treatment Options & Care for Children

12:20-1:30 Lunch
13:30–14:15 The Current Research Landscape (opportunities and updates)
14:15-15:00 Panel Discussion – Nephrotic Syndrome Beyond the Meds, Adult Patient, Caregiver, Social Worker and Advocacy Resources OR Genetics & NS
15:00-15:20 Break
15:20-16:00 Nutrition for your kidneys
16:00-16:20 Building Community – Ways to get involved
16:20- 16:35 Evaluations & Closing Remarks

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